My earliest memory is of a headache. I was three, and it ruined my trip to the zoo. Although I was not formally diagnosed with migraine disorder until my 20’s, I believe I have had migraines since childhood. I simply thought my symptoms were what other people meant when they said they have a “headache.”
My official diagnosis is status migrainosus without aura and intractable migraine. I am one of the 1% of those diagnosed with migraines for whom attacks last 72 hours+ (my longest is 44 days). Unfortunately, intractable migraines are also typically resistant to treatment.
Two things I would love people to understand about migraines:
1. It’s not just head pain. For me, a migraine also includes nausea, dizziness, balance issues, aphasia, slower processing speed, difficulty with fine motor skills (typically writing), & blurred vision.
2. A patient can do everything “right” and still suffer.
I have a great support system online, a FB group called Chronic Migraine Warriors. Our team, Migraine Crushers, is participating (in person and virtually) in the Philadelphia Miles for Migraine event October 1. Please consider a show of support to your favorite migraine warrior (me) by supporting our Philly Miles for Migraine team. Funds raised will go to migraine research & the Jefferson Headache Center.
|Donation date||Donor name||Donation amount|
|Aug 24||Doug Kane||Undisclosed amount|
|Jul 28||Jackie Linder||Undisclosed amount|
|Apr 06||Facebook Fundraiser||$30.00|
|Mar 02||Facebook Birthday Fundraiser||$25.00|
|Mar 02||Facebook Birthday Fundraiser||$105.00|
|Feb 13||Doug Kane||$27.48|
|Feb 12||Valerie Terry||$54.10|
|Feb 11||Dana Mills||Undisclosed amount|