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For participating in Miles for Migraine Philadelphia - 2023

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My Story…

My earliest memory is of a headache. I was three, and it ruined my trip to the zoo. Although I was not formally diagnosed with migraine disorder until my 20’s, I believe I have had migraines since childhood. I simply thought my symptoms were what other people meant when they said they have a “headache.”

My official diagnosis is status migrainosus without aura and intractable migraine. I am one of the 1% of those diagnosed with migraines for whom attacks last 72 hours+ (my longest is 44 days). Unfortunately, intractable migraines are also typically resistant to treatment. 

Two things I would love people to understand about migraines:

1. It’s not just head pain. For me, a migraine also includes nausea, dizziness, balance issues, aphasia, slower processing speed, difficulty with fine motor skills (typically writing), & blurred vision.

2. A patient can do everything “right” and still suffer. 

I have a great support system online, a FB group called Chronic Migraine Warriors. Our team, Migraine Crushers, is participating (in person and virtually) in the Philadelphia Miles for Migraine event October 1. Please consider a show of support to your favorite migraine warrior (me) by supporting our Philly Miles for Migraine team. Funds raised will go to migraine research & the Jefferson Headache Center.

With love, 


Recent donors

Donation date Donor name Donation amount
Aug 24 Doug Kane Thank you for being such an amazing person! Undisclosed amount
Jul 28 Jackie Linder Undisclosed amount
Apr 06 Facebook Fundraiser Facebook Fundraiser Donations through 3/6/23 ( $30.00
Mar 02 Facebook Birthday Fundraiser Facebook BDay Fundraiser through 2/21 ( $25.00
Mar 02 Facebook Birthday Fundraiser FB BDay Fundraiser Donations 2/20-2/21/23. $105.00
Feb 13 Doug Kane $27.48
Feb 12 Valerie Terry $54.10
Feb 11 Dana Mills Undisclosed amount